The SLE Workshop is a support and education program inspired by the desire of people living with lupus to learn more about the illness and its treatment. This program has been ongoing since 1985 for people with lupus and their families and friends. Lectures by lupus experts are followed by an informal discussion.
Once you become a member of the Workshop, you will receive monthly mailings. These mailings include a flyer describing the month’s topic and guest speaker. There is also a special one-page newsletter, with content relevant to members. You will also have access to the group coordinator who can provide information and referrals about lupus-related support and services.
A registration process which includes a phone interview is required before your first meeting. Before joining the group, please contact us at 212.774.7654 for a telephone interview. You will have the opportunity to "meet" the program coordinator over the phone. You’ll learn more about the workshop, and we’ll have a chance to learn more about you so we can best meet your needs.
Lupus affects everyone differently and can change over time. Living with systemic lupus erythematosis (SLE), a complex illness, can present many challenges. For example:
Through sharing personal experiences of coping, the members also provide essential support to each other. In our members’ own words:
“It took away the veil of mystery of what this disease is about. - Hope Hodson
“Whatever I can learn from other people with lupus is beneficial to me. It put things in perspective.” - Kathleen James
“It allowed me to be a better partner with my doctor and take more responsibility for my body and my healthcare.” - Karen Andreozzi
As someone living with lupus or a family member or friend, we welcome your input and feedback. Volunteers, for example, have helped to plan meetings, share their experience with lupus with new program coordinators, and develop publications. If you are a member and have an idea to contribute, please contact the Workshop program coordinator at 212.774.7654.
Not everyone can join us in person. Each year, summaries of selected workshop presentations are published online. You can review and access these at any time. Learn about HSS' national lupus support and education programs:
Visit the Lupus and APS Center of Excellence.
Access additional lupus community resources.
To learn more, contact:
SLE Workshop Coordinator
May-September, you may also contact:
Roberta Horton, LCSW, ACSW
Director, Dept. of Social Work Programs
Now available for free download, the LupusMinder app was developed by HSS to track medications, daily symptoms and appointments. Visit hss.edu/lupusminder.
HSS offers a number of free programs that reflect our comprehensive approach to care for people with lupus, myositis and rheumatoid arthritis.