Myositis Program

Additional Resources

These resources may be helpful to people living with myositis and their family and friends.

National Organization and Government Websites

Books You Might Find Helpful

Donoghue, P.J., & Siegel, M.E. (1992). Sick and tired of feeling sick and tired: living with invisible chronic illness. New York: Norton

Fennell, Patricia (2001). The chronic illness workbook: strategies and solutions for taking back your life. Oakland, CA: New Harbinger Publications, Inc.

Fenton, J. (2003). Living with myositis: facts, feelings, and future hopes. London: Thoughtful Publications

Miller, J.E. & Miller, J.E. (1995). When you’re ill or incapacitated: 12 things to remember in times of sickness, injury, or disability. Fort Wayne, IN: Willowgreen Publishing

Miller, James E. (1995). When you’re the caregiver: 12 things to remember when someone you care for is ill or incapacitated. Fort Wayne, IN: Willowgreen Publishing

Zukerman, E. & Ingelfinger, J.R. (1997). Coping with prednisone*: (*and other cortisone-related medicines): it may work miracles, but how do you handle the side effects? New York: St. Martin’s Press


Support Program Summaries

HSS offers a number of free programs that reflect our comprehensive approach to care for people with lupus, myositis and rheumatoid arthritis.