Myositis Program

Additional Resources

These resources may be helpful to people living with myositis and their family and friends.

National Organization and Government Websites

Books You May Find Useful

Donoghue, P.J., & Siegel, M.E. (1992). Sick and tired of feeling sick and tired: living with invisible chronic illness. New York: Norton.

Fennell, Patricia (2001). The chronic illness workbook: strategies and solutions for taking back your life. Oakland, CA: New Harbinger Publications, Inc.

Fenton, J. (2003). Living with myositis: facts, feelings, and future hopes. London: Thoughtful Publications.

Miller, J.E. & Miller, J.E. (1995). When you’re ill or incapacitated: 12 things to remember in times of sickness, injury, or disability. Fort Wayne, IN: Willowgreen Publishing.

Miller, James E. (1995). When you’re the caregiver: 12 things to remember when someone you care for is ill or incapacitated. Fort Wayne, IN: Willowgreen Publishing.

Zukerman, E. & Ingelfinger, J.R. (1997). Coping with prednisone*: (*and other cortisone-related medicines): it may work miracles, but how do you handle the side effects? New York: St. Martin’s Press.

Myositis Support Group Videos

Myositis Care at Hospital for Special Surgery
This video provides a glimpse into the lives of three individuals who live with myositis.

Facebook Live - Myositis Support Group Panel Discussion
Conducted live on Facebook in honor of Myositis Awareness Month, May 1, 2017.

(This video is not viewable in Microsoft Internet Explorer. Please view in an alternate browser, such as Chrome, Firefox or Microsoft Edge.)

 

Support Program Summaries

HSS offers a number of free programs that reflect our comprehensive approach to care for people with lupus, myositis and rheumatoid arthritis.