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Photo of Myositis Support Group members and Dr. David R. Fernandez.
Photo of Myositis Support Group member Phyllis at a podium with Dr. David R. Fernandez and Suzan Fischbein at right.

Myositis Program

Myositis Support and Education Program

Celebrating 20 Years of Myositis Support

The Myositis Support Group was founded in 1997 in response to patients’ expressed desire to meet other people with this rare, chronic disease. Presentations by myositis care experts are followed by informal discussion.

Please be aware that to be extra cautious with regard to the COVID-19 coronavirus, our program schedules and formats may be changed. Be sure to call the coordinator of the program in advance for further information or if you have any questions.


We meet at:

Hospital for Special Surgery
Richard L. Menschel Education Center
535 East 70th Street
New York, NY 10021

In our Members’ Own Words

  • “I get so much from attending the group. I wish I could come more often.”
  • “Being part of the group helps me feel that I am not alone.”
  • “The group is a safe place where I can open up and share my frustrations.”
  • “Thank you for continuing to send summaries to those of us who can’t attend meetings.”
  • “The group is, and always will be, an important part of my life.”

Myositis Support and Education Program Summaries


Myositis Support Brochure

View our program brochure or download it to your device.