Myositis Program

Myositis Support and Education Program

Celebrating 20 Years of Myositis Support

The Myositis Support Group was founded in 1997 in response to patients’ expressed desire to meet other people with this rare, chronic disease. Presentations by myositis care experts are followed by informal discussion.

We meet on the second Wednesday month from 6:00-8:00 pm at:

Hospital for Special Surgery
Richard L. Menschel Education Center
535 East 70th Street
New York, NY 10021

In our Members’ Own Words

  • “I get so much from attending the group. I wish I could come more often.”
  • “Being part of the group helps me feel that I am not alone.”
  • “The group is a safe place where I can open up and share my frustrations.”
  • “Thank you for continuing to send summaries to those of us who can’t attend meetings.”
  • “The group is, and always will be, an important part of my life.”

Myositis Care at HSS - Connecting Patients Through Support

Facebook Live: Panel Discussion with the HSS Myositis Support Group

In honor of Myositis Awareness Month, the Myositis Support Group conducted a live Facebook panel on May 1, 2017. Hear from people who have myositis about what it's like to live with this condition and how support groups can help.

 

In honor of Myositis Awareness Month, the Myositis Support Group conducted a live Facebook panel. Hear from people who have myositis about what it's like to live with this condition and how support groups can help.

Posted by Hospital for Special Surgery on Monday, May 1, 2017
 

Program Brochure

Myositis Support and Education Program Summaries