Charla Teen, Young Adult and Parent Support Group
Do you want to meet other teens or young adults with lupus? Please join us at our monthly support and education group.
The purpose of the Charla Teen, Young Adult and Parent Support Group is to provide a safe and comfortable space to allow teenagers and young adults with lupus, and their parents, to share their thoughts, issues and concerns related to managing lupus. At the same time, participants receive support and education that can help them to better cope with lupus.
Related Departments and Services
We accomplish this through:
- Facilitating informal group discussions on relevant topics to group members.
- Providing educational opportunities for members to learn about their lupus through guest speakers and presentations.
- Assisting with developing coping skills.
- Fostering an informal environment where teens with lupus can support, share their stories and socialize with each other.
- Charla’s monthly groups are conducted in English and Spanish: See our event calendar
- Meetings are facilitated by Charla Program Manager, Program Coordinator and Program Associates.
- Meetings alternate between HSS and Morgan Stanley Children’s Hospital of New York-Presbyterian.
At right, please see our award-winning booklet for adolescents with lupus: For Inquiring Teens with Lupus. Written by a young woman diagnosed with lupus as a teen, it provides lupus information and resources for the teen community.
Lupus Tips
The following tips were created by teens/young adults with lupus and their caregivers. These tips are intended to provide general advice on coping with lupus for those affected as well as their caregivers and loved ones.
Lupus Support Program Summaries
- The Complex Problem of Pain
- Acupuncture for Lupus: Can It Work for You?
- Pulmonary Issues and Lupus
- Who Am I Now? Living With an Autoimmune Disease
- Managing Arthritis in Lupus
- Massage Therapy and Lupus
- The Importance of Clinical Research
- Oral Concerns in People With Lupus
- Lupus, Osteoporosis and Bone Health
- Eye Problems in Lupus
- Vaccinations and Lupus: What You Should Know
- Lupus Blood Test Results Explained
- Possible Environmental Triggers Associated With Autoimmune Diseases
- Nutrition and Lupus: How to Maintain a Healthy Diet
- Lupus and Your Emotions
- Lupus, Sexuality and Intimacy
- Lupus-related Fatigue and Cognitive Dysfunction: The Chicken and the Egg
- How Lupus Affects Multiple Organs
- How People with Lupus Can Build and Maintain Motivation for Healthy Habits
- Lupus and COVID-19: A Q&A Session for the LANtern® (Lupus Asian Network) Lupus Health & Wellness Day
- The Emotional Impact of the Pain Experience
- Lupus Fog – Changes in Memory and Thinking
- Lupus, Vasculitis and Blocked Blood Vessels
- Dealing with Uncertainty in Your Lupus Diagnosis
- How to Communicate with Your Lupus Healthcare Team
- Cutaneous Lupus and Lupus Rashes: What You Need to Know
- Infusion Therapy and Lupus
- Lupus and Fatigue
- Managing Holiday Stress When You Have Lupus
- Getting Exercise and Keeping Physically Fit While Living with Lupus
- Doctor-Patient Communication: Guidelines and Best Practices
- Systemic Lupus Erythematosus (SLE) and Depression
- Heart Health and Chronic Inflammatory Disorders
- Complementary and Alternative Therapies for Pain
- Teens with Lupus – and Parents – Get Special Help in Chat Groups
- Lupus and Employment Rights: Knowing Your Options