Scleroderma and Vasculitis are major areas of investigation and clinical care at HSS. We have been a site for pivotal trials in Vasculitis, and with the establishment of the Rudolph Rupert Scleroderma Center have emerged as a leading institution for scleroderma research. Myositis and related conditions are also areas of focus. We have created an infrastructure for clinical, translational, and basic research in Scleroderma, Myositis and Vasculitis, as well as for community outreach and patient and physician education.
We invite you to participate in a needs assessment survey to better inform future programs for patients with scleroderma and their loved ones. Your responses are completely anonymous and confidential. It is not mandatory to answer every question, however your complete feedback will help us learn more. Deadline: Sept 1, 2020.
HSS rheumatologist Jessica Gordon, MD answers patients' top questions regarding medication intake, lessons learned, research updates, telehealth and more. HSS social workers, Juliette Kleinman, LCSW, ACSW and Susan Rodriguez, ACSW go over coping and adjusting strategies, and Bruce Cowan from the Scleroderma Foundation Tri-state Chapter moderates.
View the slides from a special video forum, held, Monday, April 13, 2020 and presented by Juliette Kleinman, LCSW, ACSW, and Susan Rodriguez, LCSW.
HSS has been instrumental in bringing attention to Scleroderma, Vasculitis and Myositis. We here at the SVM Center want to further those efforts by highlighting these conditions throughout the year. Please join us as we spread awareness in:
Our hope is to not only to bring these diseases to light, but to also bring this community of patients together in their fight.
Below is a multimedia recording of a talk on patient self-advocacy for people with scleroderma, presented at the SVM Center on October 2, 2018.
For Myositis Awareness Month 2017, members of the Myositis Support and Education Group discussed what it's like to live with the condition and how support groups can help. Watch the video on the HSS Playbook.
For Scleroderma Awareness Month 2017, Dr. Robert Spiera spoke with one of his patients about her experience with scleroderma, and the two answered questions from the viewing audience. Watch the video on the HSS Playbook.
Leverage your gift and help us fight scleroderma.