Scleroderma, vasculitis and myositis are major areas of investigation and clinical care at HSS. The Scleroderma, Vasculitis and Myositis (SVM) Center of Excellence has been a site for pivotal trials in vasculitis, and with the establishment of the Rudolph Rupert Scleroderma Center, emerged as a leading institution for scleroderma research. Along with an established infrastructure for clinical, translational, and basic research for all three conditions, we also have community outreach programs and patient and physician education.
HSS has been instrumental in bringing attention to scleroderma, vasculitis and myositis. We here at the SVM Center want to further those efforts by highlighting these conditions throughout the year. Please join us as we spread awareness in:
Our hope is to not only to bring these diseases to light, but to also bring this community of patients together in their fight.
Sign up for our newsletter and learn more about our support groups and patient education below:
Monthly myositis support group meetings sponsored by the Department of Social Work Programs and the Division of Rheumatology at Hospital for Special surgery. The group meets on the 2nd Wednesday of every month at 6:00 pm. Please contact Suzan Fishbein at email@example.com or 212.774.7623 for meeting information.
We host a number of educational programs to enhance the public’s awareness of scleroderma, vasculitis and related conditions. View footage of past educational forums hosted by Scleroderma Foundation Tri-State, Inc.
Social Workers are available to address your and your family's individual needs around a new diagnosis, or any related emotional, social, or practical concerns that can arise. We offer supportive counseling and referrals to community resources through Mary Carey, Senior Social Work Manager, Rheumatology, 212.774.2737 or firstname.lastname@example.org. For further information, please visit the Department of Social Work Programs website.
Occupational therapy provides individualized treatment programs designed to improve dexterity, coordination, mobility and strength of the upper extremities. This specialty focuses on maximizing independence in daily activities to facilitate independence and ensure optimal level of function at home and on the job. The occupational therapists at the HSS Hand Therapy Center provide quality care for patients.
Our occupational therapists are experienced in managing patients with scleroderma, vasculitis, and myositis and are trained to evaluate, assess musculoskeletal function and functional performance. If your hands make it difficult to perform everyday simple tasks such as:
An occupational therapist can recommend new ways of doing things or devices to make tasks easier, and help make you more independent. Occupational therapists can also prescribe specific exercises to help stretch the tissue, and maintain motion. For more information or to set up an appointment, please contact 212.606.1660.
Carol Streep, MS, RD, CDN, LDN
Carol is a Clinical Nutritionist with the Department of Food & Nutrition Services at HSS. She received her Master of Science in Clinical Nutrition from New York University, gaining extensive experience in medical nutrition therapy. Carol works with a broad spectrum of conditions – focusing on a wide array of musculoskeletal conditions and rheumatic diseases, as well as weight management and bone health. Carol believes in a personalized approach to counseling, listening to her patient’s unique needs to create a well-balanced, sustainable nutrition plan.
Scleroderma, Vasculitis, and Myositis are serious diseases which can be life threatening and life altering. The impaired quality of life imposed by these diseases as well as the uncertainties they pose for future good health are a hardship for both the patient and their family. Seeking emotional/spiritual support can help with the management of your care.
As members of the health care team, the professional chaplains in the Hospital's Department of Spiritual Care can help improve patient and family outcomes by identifying and addressing important beliefs and values; meeting spiritual needs; and reducing spiritual distress and anxiety for all persons regardless of faith, belief or culture.
The Department of Spiritual Care is located at the Main Hospital, 535 East 70th Street, New York, NY 10021 in 9W Room 105. Please call 212.606.1757 for more information.
Watch this video recording of a talk on self-advocacy for people with scleroderma or any chronic condition, presented at the SVM Center. Presenters discuss how to manage your illness, get support, utilize community resources and find a provider you trust.
Our articles are written or edited by doctors, clinicians and specialists in their field. Review our articles below to learn more about each illness.
Below are selected publications of our center physicians. To see a complete list of their specialties and publications, please see our faculty and staff page.