New York—February 19, 2014
Who: Scleroderma Foundation / Tri-State Chapter
What: New Support Group for Men with Scleroderma – You are not alone
When: First Wednesday of every month
Where: Hospital For Special Surgery, 8th Floor, Rm 821W
535 E 70th Street
New York, NY 10021
For more information please contact Eric Goldstein, Support Group Leader, at 646-275-4178 or email: ScleroMen@scleroderma.org.
Contact: Mary Beth Bobik-Kadylak
Patient Education & Support Director
Scleroderma Foundation / Tri-State, Inc. Chapter
Assistant Director Public Relations & Social Media
Hospital for Special Surgery
About Men & Scleroderma
Because scleroderma manifests in a very unique way in men, their issues and concerns are unique as well. This is likely why we see so few men come to support group meetings on a regular basis. There are also other issues unique to the male gender such as upbringing, expectations and need to control emotions like sadness, grief, and signs of weakness that are likely barriers to their participation. These issues however cause more stress, adding to the fatigue and pain that most people with scleroderma experience.
This new support group will be just for men with scleroderma and will be held with the support of the Scleroderma, Vasculitis and Myositis Treatment Center at Hospital for Special Surgery.
What is Scleroderma?
Literally, scleroderma means “hard skin”; however the disease is better defined as being characterized by a hardening of the body’s connective tissue. Approximately 300,000 individuals in the US are affected by the disease. An estimated 29,000 of them live in the Tri-State Chapter’s New York, New Jersey and Connecticut service area.
About the Scleroderma Foundation / Tri-State Chapter
The Scleroderma Foundation/Tri-State Inc., Chapter is a 501(c)(3) non-profit organization serving New York, northern New Jersey and Connecticut. The chapter has a three-fold mission which is to promote the welfare of individuals and families affected by scleroderma, increase public awareness and support scleroderma research.
About Hospital for Special Surgery
Hospital for Special Surgery (HSS) is the world’s leading academic medical center focused on musculoskeletal health. HSS is nationally ranked No. 1 in orthopedics and No. 2 in rheumatology by U.S. News & World Report (2016-2017), and is the first hospital in New York State to receive Magnet Recognition for Excellence in Nursing Service from the American Nurses Credentialing Center four consecutive times. HSS has one of the lowest infection rates in the country. HSS is an affiliate of Weill Cornell Medical College and as such all Hospital for Special Surgery medical staff are faculty of Weill Cornell. The hospital's research division is internationally recognized as a leader in the investigation of musculoskeletal and autoimmune diseases. Hospital for Special Surgery is located in New York City and online at www.hss.edu.