New York—February 19, 2014
ScleroMen Social Media Support Group
Because scleroderma manifests in a unique way in men, their issues and concerns are unique as well.
The ScleroMen social media support group provides a means for men with scleroderma to connect with one another. Members share stories, seek advice and ask questions – in a caring and supportive environment. Join ScleroMen and become part of an understanding and educated group of men finding ways to deal with scleroderma and its complications. This is a closed Facebook group. Only men with scleroderma may join by request.
Co-Leader: Andrew Botieri
What Is Scleroderma?
Literally, scleroderma means “hard skin”; however the disease is better defined as being characterized by a hardening of the body’s connective tissue. Approximately 300,000 individuals in the US are affected by the disease. An estimated 29,000 of them live in the Tri-State Chapter’s New York, New Jersey and Connecticut service area.
About the Scleroderma Foundation / Tri-State Chapter
The Scleroderma Foundation/Tri-State Inc., Chapter is a 501(c)(3) non-profit organization serving New York, northern New Jersey and Connecticut. The chapter has a three-fold mission which is to promote the welfare of individuals and families affected by scleroderma, increase public awareness and support scleroderma research.