Patient Registries

Hospital for Special Surgery has pushed the boundaries of medicine with breakthrough research that has led to new and better approaches to treating musculoskeletal disease. Patient registries help us examine the long-term effects of disease and current treatments on our patients, and provide a deeper understanding of the physical, emotional, and socio-economic realities for those with musculoskeletal conditions treated at HSS.

With your participation, we can gather and examine invaluable information that will allow clinicians to not only learn more about the impact of musculoskeletal disease and treatment across different populations, but also to direct our research to find better ways to help our patients now and in the future.

Registry NameServicePrincipal InvestigatorPI Last
Foot and Ankle Registry  Foot & AnkleJonathan Deland, MDDeland
Multicenter Study of Use of and Complications in Pediatric Regional Anesthesia (PRAN)  Research - AnesthesiologyKathryn DelPizzo, MDDelPizzo
Cerebral Palsy Hip Outcomes Project (CHOP) Registry  Pediatric OrthopedicsEmily Dodwell, MDDodwell
Prospective Pediatric Orthopaedic Registry  Pediatric OrthopedicsEmily Dodwell, MDDodwell
A Prospective Registry to Study Presentation Clinical Course, Treatment Patterns and Outcomes in Patients with Systemic Lupus Erythematosus  RheumatologyDoruk Erkan, MDErkan
Antiphospholipid Syndrome Alliance for Clinical Trials and International Networking (APS Action) International Clinical Database and Repository  RheumatologyDoruk Erkan, MDErkan
The Myositis Registry and Repository  RheumatologyDavid Fernandez, MDFernandez
A Registry of Orthopedic Patients at HSS Meeting the STOP Sepsis Campaign or CDC Ventilator Associated Event (VAE) Diagnostic Criteria  ResearchSean Garvin, MDGarvin
Prospective Registry of Early Systemic Sclerosis (PRESS) - Phenotypic, Serologic, and Biomarker/Genetic Characteristics of Early Diffuse Cutaneous Scleroderma  RheumatologyJessica Gordon, MDGordon
ABOS PRISM Pediatric Knee Registry  Pediatric OrthopedicDaniel Green, MDGreen
ROCK Comprehensive Cohort for Osteochondritis Dissecans of the Knee  Pediatric OrthopedicsDaniel Green, MDGreen
Prospective Evaluation of the Clinical and Economic Outcomes of Total Joint Replacement: The HSS Shoulder Arthroplasty Cohort  Sports Medicine and ShoulderLawrence Gulotta, MDGulotta
Elbow Reconstruction and Repair Database  Hand and Upper ExtremityRobert Hotchkiss, MDHotchkiss
Center for Hip Pain and Preservation Outcomes Registry  Sports Medicine/Hip Preservation ServicesBryan Kelly, MDKelly
Scoliosis Research Center Registry and SCTR/FOCOS Database v,5  Scoliosis/SpineHan Jo Kim, MDKim
Prospective Multi-Center Adult Spine Deformity Outcome Registry  SpineHan Jo Kim, MDKim
Fragile Bone Registry  Osteoporosis/Metabolic Bone DiseaseJoseph Lane, MDLane
BrainWorks: The International Childhood CNS Vasculitis and Inflammatory Brain Disease Outcome Study  Pediatric RheumatologyThomas Lehman, MDLehman
Observational Study of Pediatric Rheumatic Diseases: The CARRA (Childhood Arthritis & Rheumatology Research Alliance) Registry  Pediatric RheumatologyThomas Lehman, MDLehman
The Chronic Nonbacterial Osteomyelitis (CNO) Registry  Pediatric RheumatologyThomas Lehman, MDLehman
Prospective Evaluation of the Clinical and Economic Outcomes of Total Joint Replacement: The HSS Hip Arthroplasty Cohort  Adult Reconstruction and Joint ReplacementStephen Lyman, PhDLyman
Prospective Evaluation of the Clinical and Economic Outcomes of Total Joint Replacement: The HSS Knee Arthroplasty Cohort  Adult Reconstruction and Joint ReplacementStephen Lyman, PhDLyman
The Physiatry Electronic Registry (PERk)  PhysiatryPeter Moley, MDMoley
CORRe: The Collaborative Orthopaedic Replacement Registry  Adult Reconstruction and Joint ReplacementDouglas Padgett, MDPadgett
Osteolysis Tissue Registry and Repository  ResearchEd Purdue, PhDPurdue
Center for Skeletal Dysplasia Clinical Research Registry  Pediatric OrthopedicsCathleen Raggio, MDRaggio
Establishment of a Registry and DNA Repository for Genetic Mapping of Congenital Scoliosis  Pediatric OrthopedicsCathleen Raggio, MDRaggio
Hip Device Registry  Hip and KneeChitranjan S. Ranawat, MDRanawat
Knee Device Registry  Hip and KneeChitranjan S. Ranawat, MDRanawat
Hospital for Special Surgery ACL Reconstruction Research Registry and Tissue and Cell Repository  Sports Medicine and ShoulderScott Rodeo, MDRodeo
Prospective Analysis of Limb Lengthening and Reconstruction Outcomes  Limb Lengthening & Complex Reconstruction ServiceS. Robert Rozbruch, MDRozbruch
Autoimmune Disease Registry and Repository  RheumatologyJane Salmon, MDSalmon
Undifferentiated Connective Tissue Disease Registry  RheumatologyLisa Sammaritano, MDSammaritano
HSS Patellofemoral Registry  Sports Medicine and ShoulderBeth Shubin Stein, MDShubin Stein
Hip Joint Preservation Repository  Pediatric Orthopedics and Hip Preservation ServicesErnest Sink, MDSink
Scleroderma Registry and Repository  RheumatologyRobert Spiera, MDSpiera
SSc Clinical Repository  RheumatologyRobert Spiera, MDSpiera
VCRC Genetic Repository One Time DNA Protocol  RheumatologyRobert Spiera, MDSpiera
Hospital for Special Surgery Cartilage Repair Registry  Sports Medicine and ShoulderRiley Williams, MDWilliams
Brachial Plexus Database  Hand and Upper ExtremityScott Wolfe, MDWolfe
Distal Radius Fracture Database  Hand and Upper ExtremityScott Wolfe, MDWolfe
Scaphoid Nonunion Registry  Hand and Upper ExtremityScott Wolfe, MDWolfe