LGBTQ+ people face many barriers within health care, including discrimination, ignorance, and fear. The lack of informed care, sensitive language, research, and data prevents access to competent routine care and screening. LGBTQ+ health is emerging as a national concern due to the growing body of evidence indicating significant health care disparities experienced by the LGBTQ+ community.
In the last year, the Institute of Medicine (IOM) and The Joint Commission have published reports underscoring the need to address inequalities of care for the LGBTQ+ population. These landmark documents have recognized that LGBTQ+ health requires specific attention from health care and public health professionals. The more informed social service and health professionals are, the more comfortable LGBTQ+ clients will be within a setting that can be alienating.
- Using The Joint Commission Field Guide, Advancing Effective Communication, Cultural Competency and Patient and Family-Centered Care for the LGBTQ+ Community, participants will be able to identify and address challenges to providing quality health care to LGBTQ+ clients in the health care setting.
- Participants will learn strategies and skills to enhance clinical screening, assessment, and interventions with LGBTQ+ clients.
- Through case examples and practice, participants will be able to apply these principles in their daily practice.
- Participants will identify community resources available for LGBTQ+ clients.
Why It Is important to Have a Training on Providing Care for LGBTQ+ Clients
Healthcare providers bring their own biases about sexual orientation and gender to their work, even when they don’t realize it. It’s important to consider what kind of biases we all carry with us while providing care to this community.
Many LGBTQ+ people, especially transgender, avoid seeking both preventative care and care for urgent or life-threatening conditions. This is because it has been their experience that very few healthcare providers have supportive and sensitive services for the LGBTQ+ population.
Creating a Welcoming Environment for LGBTQ+ Clients
LGBTQ+ patients enter the environment and immediately ask themselves, “Will I be accepted here? Is this a place where I will feel comfortable? Does anyone here look like me? Are there materials available here for my community?”
We, as healthcare workers, can:
- Establish trust and rapport with patients. Even when workers know how to ask questions about sexual behavior, identity and attraction, they may not feel comfortable doing so. In this situation, their discomfort may be communicated to LGBTQ+ patients.
- Normalize and validate – ask the questions as you would to any patient.
- Ask open-ended questions – “Tell me about yourself? Are you involved in a relationship?” Do not assume anything about the relationship, the partner, or the sexual behavior. Don’t assume you know anything about their sexual behavior based on how they identify or with whom they are partnered. Let the information that emerges guide the rest of your interview.
- Be aware of issues particular to, or different for, the LGBTQ+ population:
- Coming out
- Having children—reproduction or adoption
- Parenting and creating families
- Legal rights as parents and partners
Breaking Down the Terms
It is important to think along a continuum, when considering sex, gender, gender identity, and sexual orientation, rather than binary categories.
- Sex: This refers to the genitalia one is born with – male, DSD (Differences of Sex Development, also known as Intersex), female.
- Gender relates to:
- Gender Expression—how one expresses gender—masculine, androgynous, feminine continuum.
- Gender Identity—how one feels on the inside—man, genderqueer, woman continuum. Gender identity is determined by the individual, and is felt on the inside, so you need to ask how one identifies—it is not apparent on the outside.
- For transgender people, their assigned gender and bodies do not match up with their gender identity.
- Sexual Orientation: This refers to whom you are attracted. This is different from gender or gender identity. You cannot assume one’s sexual orientation – you have to ask to know.
- Transgender: People who feel the binary (m/f) gender assigned to them at birth is misleading, incomplete, or does not match how they feel on the inside.
- “Transwoman” refers to someone who was assigned male at birth and lives and/or identifies as a woman.
- “Transman” refers to someone who was assigned female at birth and lives and/or identifies as a man.
- If someone identifies as a transman, use masculine pronouns; if someone identifies as a transwoman, use feminine pronouns.
- If you need to ask body-related questions, explain why you need the information, so the person doesn’t think you are just curious. You cannot assume a transgender person’s sexual orientation; again, you must ask to know.
- Cisgender: People whose gender identity and gender expression align with the sex they were assigned at birth.
- Gender Non-Conforming: People whose gender identity and expression do not align with the sex they were assigned at birth.
- Gender Neutral Pronouns: “zie”, “hir”, “they”. Let patients decide on their own pronoun and do not question its grammatical correctness.
- Gender Transition: Many different ways exist – medically (hormones, surgery), legally (name, pronoun). Do not assume that “transitioning” means medically – ask. If the name that the patient gives does not match the one on the ID, know that this is a scary issue for transgender people and ask with sensitivity.
Understanding the Barriers
LGBTQ+ Health Disparities
Transgender and LGBTQ+ people experience more fears and concerns about accessing health care across the board.
Common barriers LGBTQ+ people experience accessing healthcare:
- LGBTQ+ individuals are less likely to have health insurance than their heterosexual counterparts. 
- Insurance plan language may exclude coverage for routine care and for transition-related care (hormones, surgery often not covered)
- Insurance plan may have a narrow definition of families, and not include “chosen” family of LGBTQ+ people.
- Previous negative experiences in healthcare settings can scare LGBTQ+ individuals from obtaining medical care.
- Lack of provider information and knowledge about LGBTQ+ health needs and risks prevent LGBTQ+ individuals from receiving proper medical care.
- A lack of LGBTQ+-specific research, policies and procedures can hinder proper medical care and treatment.
- LGBTQ+ individuals may experience multiple stigmas, including race, class, ability, geographic location, and immigrant status. For example, studies show reduced access among LGBTQ+ people of color.
Health issues that affect the LGBTQ+ community:
The following are health issues that the LGBTQ+ community faces frequently and what we as healthcare workers should pay attention to. Since LGBTQ+ people facing discrimination in healthcare are less likely to come in for care, these issues may be especially pressing and we would want to pay attention to them. Due to perceived discrimination in healthcare LGBTQ+ patients are less likely to access healthcare consistently.
Therefore, the LGBTQ+ community when presenting for care may be at higher risk for the following health issues or may present with more acute or severe manifestations: ,
- Smoking, alcohol, and substance abuse. 
- Mental health illnesses, such as anxiety and depression.
- Sexual and reproductive health.
- Eating disorders, obesity.
- Cardiovascular health.
- Higher rates of sexually transmitted diseases.
- Increased risk of cancer, due to decreased screenings. 
- Limited evidence-based research on hormones. 
- Intimate Partner Violence (IPV)
- Do not assume there is less IPV in the LGBTQ+ community. What is unique to LGBTQ+ IPV is that abusers may threaten to “out” partner to family, employer, etc. Also, there are fewer sources of support – LGBTQ+ people may not want to be in a support group with heterosexual IPV victims. As a result, IPV is underreported in the LGBTQ+ community. 
LGBTQ+ Needs Across the Life Span
Special considerations for LGBTQ+ youth: 
- Increased risk for suicide and depression.
- Increased smoking, alcohol and substance use.
- A huge percentage of homeless youth in NYC are LGBTQ+ because they have been kicked out of their homes. 
- Higher levels of violence, victimization and harassment (including bullying in school). 
Special considerations for LGBTQ+ older adults: ,
- Stigma, discrimination and violence, isolation, and lack of family support can affect all LGBTQ+ people, but older adults, in particular, may have a more limited support system. They are subject to the rules and attitudes of nursing homes, assisted living facilities, where they may experience homophobia/transphobia.
- There may be Social Security and pension plan exclusions. For example, they may be unable to go on a spouse’s plan if their relationship is not legally recognized.
- Although recently passed federal regulation seeks to insure nondiscrimination for hospital visitation rights, this may still be a concern at some hospitals.
- Community programs and resources which are specific to the needs of LGBTQ+ older adults may be limited.
- 48% of transgender adults have delayed or avoided medical care, compared to 29% LGB adults and 17% heterosexual adults. 
- 41% of transgender adults can’t change their gender on their ID’s (Rules vary by state; in NY state, need physician letter stating you have had gender re-assignment surgery), 57% Transgender people were rejected by their families, 19% have experienced homelessness, 19% have been refused medical care, 47% have attempted suicide. 
- Transgender adults experience significantly higher rates of healthcare providers being unaware of their health needs, refusing to provide care, providing worse care, or treating them poorly during provision of care than LGB adults. 
Barriers to healthcare trans people encounter: 
- Denial of healthcare.
- Lack of informed care.
- Lack of insurance coverage for medically necessary gender-related care. For example, a transman needing gynecological care may be denied by the health insurance.
- Sex segregated services, like homeless shelters, are based on gender.
- Inappropriate name or pronoun use. If this occurs, it is important to acknowledge mistakes and apologize.
- When asking questions about genitalia or transgender status, explain why you need the information, so it is clear you are not just curious. If you don’t need information about genitalia or transgender status in order to provide care, refrain from asking.
- If intake forms do not always allow for proper taking of information or if questions are offensive, this creates a barrier.
- Confidentiality/Privacy are not always respected. You may be the only person in the setting to whom the patient reveals his/her transgender status. Be careful how you treat this information. Ask the patient how they want the information to be treated. For example, information to be put in the computer system or not, or revealed to the physician or not.
- In sum, it is very important to provide sensitive care, so that LGBTQ+ people will feel comfortable and not be denied, or turn away from, care and treatment.
- Look around at the environment. Try to imagine what it will be like for an LGBTQ+ person to come in the door and use the facility, including the restroom facilities.
- Think about what LGBTQ+ people might have already experienced out on the street, such as violence or discrimination, on their way to the hospital.
- Take a look at the healthcare brochures available in your setting to see if they seem inclusive for LGBTQ+ people. If not, you can acknowledge that the information is not inclusive and say, “But here are the parts of it that I think are relevant to you.” Just being aware of this and acknowledging it will make someone more comfortable.
- Callen-Lorde Community Health Center, a primary health care center in New York City dedicated to meeting the health care needs of the lesbian, gay, bisexual and transgender (LGBTQ+) communities and people living with HIV/AIDS has helpful resources available.
- Rainbow stickers go a long way to make LGBTQ+ people comfortable in a healthcare environment. For example, employees should feel comfortable exhibiting rainbow stickers at their work station.
Useful Guides for Health Professionals:
- LGBTQ+ patients and their will feel most comfortable when written and posted policies regarding discrimination, diversity and non-harassment specifically include LGBTQ+ people. Health professionals should know the policies of the hospital, in case they are asked.
- Callen-Lorde has good examples of how LGBTQ+ needs can be integrated into medical forms:
- Ask for legal names and chosen names, partner information, sex assigned at birth, gender identity, sexual orientation, gender as listed in health insurance claim, and say why the information is needed. This is important because LGBTQ+ people may be afraid to provide this information.
- Be sure to use sensitive language when asking relevant questions. Ask necessary questions using sensitive language:
- “What gender pronoun would you like me to use?”
- "How do you define/identify your gender?”
- “What are the words you use to describe your body parts?”
- You have to ask everyone, not just patients who think “might” be LGBTQ+, otherwise this could be offensive.
- Ask open-ended questions:
- “Are you in a relationship? – Tell me about it,” rather than, “Are you married?” or “Do you have a girlfriend/boyfriend?”
- When talking with patients, do not assume a patient calls himself “gay”. Everyone has their own terms – ask! Use the language they use, including pronouns. Be respectful and empathic. If you are not sure what terminology to use, ask the patient.
- Be sensitive to pronoun usage. Only document information that is relevant to patient care.
Mr. Levitt ended his presentation with a discussion of several case examples that can occur in a hospital setting.
- How we can manage differences in the name patients identify versus their birth name, as well as pronoun usage, with our colleagues was addressed. How this is routinely addressed in other health care settings was discussed.
- Assessment questions that we can routinely be asking in order to obtain more information were explored.
- How cultural difference/norms impact LGBTQ+ terminology and our language as clinicians was discussed.
Nathan Levitt works as a Registered Nurse on the Oncology Unit at Maimonides Medical Center and as the Community Education Nurse at Callen-Lorde Community Health Center. Nathan has worked as a community organizer, researcher, consultant, trainer, and health educator with international and national organizations for 15 years and currently provides trainings on lesbian, gay, bisexual, and transgender health for hospitals and health centers.
LGBT Health Resources
- American Medical Student Association’s LGBT Health Action Committee
- Callen-Lorde Community Health Center
- Cancer Resources for the LGBT Community
- CDC: LGBT Health
- Fenway Institute offers LGBT Health Education and LGBT Health Resources
- GLMA: Health Professionals Advancing LGBT Equality
- GLBT Health Access Project
- Healthy People 2010 Companion Guide to LGBT Health
- Human Rights Campaign: Health Care Equality Index
- Institute of Medicine: Collecting Sexual Orientation and Gender Identity Data in Electronic Health Records - Workshop Summary
- Institute of Medicine Report: The Health of Lesbian, Gay, Bisexual, and Transgender People: Building a Foundation for Better Understanding
- Joint Commission: Advancing Effective Communication, Cultural Competence, and Patient- and Family-Centered Care for the Lesbian, Gay, Bisexual, and Transgender (LGBT) Community
- Lesbian Health
- National Association of Community Health Centers: Reaching out to “other” special populations, LGBT Patients National LGBT Cancer Network
- National Center of Excellence for Transgender Health
- National Coalition for LGBT Health
- National LGBT Health Education Center offers publications
- National LGBT Health Education Center free Learning Modules on Ending Invisibility: Better Care for LGBT Populations
- National LGBT Health Education Center: Free Webinars
- Posters on LGBT Healthhttp://www.glbthealth.org/HAPMaterials.htm
- Self-Assessment Checklist for Personnel Providing Services and Supports to LGBTQ Youth and Their Families.
- Transgender Health Program: Vancouver Coastal Health
- US Department of Health and Human Services Recommended Actions to Improve the Health and Well-Being of Lesbian, Gay, Bisexual, and Transgender Communities
- When Healthcare Isn’t Caring: Lambda Legal's Survey on Discrimination Against LGBT People and People Living with HIV
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Kathryn Klingenstein, LMSW, Social Work Programs Department
Emily Reiss, LMSW, Social Work Programs Department