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The Sjögren’s Syndrome Foundation to Hold First Special Event in New York City

Signature event “Sip for Sjögren's” to take place on Monday, March 17, 2014

New York—March 12, 2014

The Sjögren’s Syndrome Foundation (SSF) is excited to bring one of their signature fundraising and awareness events to New York City for the very first time. The first “Sip for Sjögren’s” will take place on Monday, March 17 at 6:30pm in the Rosenthal Pavilion, located on the 10th floor of the New York University Kimmel Center. The goal of the event to raise awareness for Sjögren's and funds to further the research and awareness efforts of the SSF, the only national non-profit dedicated to increasing research, education and awareness for Sjögren's.

“We are extremely excited to bring this event to New York City. We look forward to connecting with the local Sjögren's patient community, their families and friends, local healthcare professionals and our local corporate partners,.” said Steven Taylor, Chief Executive Officer of the SSF.

“In addition, over 100,000 New York City residents are affected by this autoimmune disease yet due to a lack of awareness, many remain ill without proper diagnosis or treatment. Therefore, we are also eager to help bring awareness of this debilitating disease to the largest city in the U.S.”

“Sip for Sjögren's” is a fine water tasting event created to provide an enjoyable experience directly tied to the disease itself as one of the most common symptoms of Sjögren's is dry mouth. This unique event will feature a tasting of fine bottled waters from around the world while helping to increase awareness for Sjögren's and raise funds to benefit the SSF.  We are also very excited to have Award-Winning Chef, NYC Restaurateur, Cookbook Author & Autoimmune Patient, Seamus Mullen, as our guest speaker. The event will include drinks, hors d’oeuvres and a silent auction. The SSF is also incredibly thankful for our generous sponsors which include NeutraSal, Hospital for Special Surgery, University Chemists, NCM Media Networks, Nancy Cohen Roberts, Drs. Ira & Sandra Harkavy and Jonathan Axelrod & Beth Harkavy Axelrod.

Tickets are $75 each.  Please visit http://nycsipforsjogrens.eventbrite.com to purchase tickets or for additional information. You can also contact the SSF at (301) 530-4420, ext. 207.

About Sjogren’s & the Sjögren's Syndrome Foundation
Sjögren's is a serious autoimmune disease in which the body’s immune system attacks the moisture producing glands in the body. It can also affect any body system or organ and many patients experience extreme fatigue and joint pain. Sjögren's is the second most prevalent rheumatic autoimmune disease in the U.S, with an estimated four million individuals affected, making it three times more common than better known related diseases such as Lupus and Multiple Sclerosis. However, Sjögren's is often undiagnosed or misdiagnosed with the average time from the onset of symptoms to diagnosis being five years. Founded in 1983, the SSF provides patients with information and coping strategies to deal with Sjögren's. In addition, the SSF is the clearinghouse for medical information and the recognized national advocate for Sjögren's.  The Foundation’s mission is to educate patients and their families about Sjögren’s, increase public and professional awareness of Sjögren's and encourage research into new diagnostics and treatments for Sjögren's.

 

About HSS | Hospital for Special Surgery
HSS is the world’s leading academic medical center focused on musculoskeletal health. At its core is Hospital for Special Surgery, nationally ranked No. 1 in orthopedics (for the ninth consecutive year) and No. 3 in rheumatology by U.S.News & World Report (2018-2019). Founded in 1863, the Hospital has one of the lowest infection rates in the country and was the first in New York State to receive Magnet Recognition for Excellence in Nursing Service from the American Nurses Credentialing Center four consecutive times. The global standard total knee replacement was developed at HSS in 1969. An affiliate of Weill Cornell Medical College, HSS has a main campus in New York City and facilities in New Jersey, Connecticut and in the Long Island and Westchester County regions of New York State. In 2017 HSS provided care to 135,000 patients and performed more than 32,000 surgical procedures. People from all 50 U.S. states and 80 countries travelled to receive care at HSS. In addition to patient care, HSS leads the field in research, innovation and education. The HSS Research Institute comprises 20 laboratories and 300 staff members focused on leading the advancement of musculoskeletal health through prevention of degeneration, tissue repair and tissue regeneration. The HSS Global Innovation Institute was formed in 2016 to realize the potential of new drugs, therapeutics and devices. The culture of innovation is accelerating at HSS as 130 new idea submissions were made to the Global Innovation Institute in 2017 (almost 3x the submissions in 2015). The HSS Education Institute is the world’s leading provider of education on the topic on musculoskeletal health, with its online learning platform offering more than 600 courses to more than 21,000 medical professional members worldwide. Through HSS Global Ventures, the institution is collaborating with medical centers and other organizations to advance the quality and value of musculoskeletal care and to make world-class HSS care more widely accessible nationally and internationally.

 

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