New York, NY—October 22, 2003
Did YOU know that:
- Systemic Lupus Erythematosus (SLE) is a life-threatening illness, which attacks a person’s autoimmune systems. It can inflame joints and attack kidneys, hearts, lungs and livers, setting a patient’s body on a course of destroying its own healthy tissues.
- 1 million Americans suffer from this potentially fatal autoimmune disease with 90% being women.
- 1 out of every 102 women has lupus. Most are stricken during their childbearing years.
- Most people develop Lupus between the ages of 15 and 45.
- Asians, African Americans and Latina women are 2-4 times more likely to have Lupus than Caucasian women.
While there is no cure yet, the Hospital for Special Surgery offers a variety of support and education programs for people with Lupus.
- LupusLine, a national telephone peer counseling service, links callers with trained volunteers who have Lupus. Since its inception in 1988, LupusLine has helped more than 16,000 patients and their families. Call 866-375-1427 toll-free.
- Charla de Lupus, a peer health education program, links callers with trained volunteers who are Lupus veterans, with a particular emphasis on reaching Spanish- speaking communities. The program also offers monthly Teen and Parent Chat Groups in New York City. Call 866-812-4494 for assistance in English and Spanish.
- LANtern, a peer health education program that supports, empowers and enhances the quality of life of Asian Americans and their families, initially targeting the Chinese American community. Call 866-505-2253 for assistance in English, Cantonese and Mandarin.
- SLE Workshop, an informal forum held at Hospital for Special Surgery in which lectures by prominent Lupus experts are followed by group discussion. Call 212-606-1033.
In addition, we are pleased to offer two new publications:
For Inquiring Teens with Lupus: Our Thoughts, Issues & Concerns, a teen-focused educational booklet. Call 866-812-4494 toll-free for a copy.
What Chinese-Americans and their Families Should Know About Lupus, a Bilingual English/Chinese culturally relevant informational booklet. Call 866-505-2253 toll-free for a copy.
The Hospital for Special Surgery has been a pioneer in Lupus research since the 1960’s. It has the nation’s largest registry of adults and children with Lupus, with essential clinical and DNA information on hundreds of cases. In 1993, it became the first specialized research center on Lupus in the United States under a grant from the National Institutes of Health. HSS houses the $7.7 million Mary Kirkland Center for Lupus Research, which aims to identify the genetic and immune system determinants of systemic lupus erythematosus (SLE), to conduct patient-focused research to understand the most important disease features, and to improve the quality of life for lupus patients.
About Hospital for Special Surgery
Hospital for Special Surgery (HSS) is the world’s largest academic medical center focused on musculoskeletal health. HSS is nationally ranked No. 1 in orthopedics and No. 2 in rheumatology by U.S. News & World Report (2016-2017), and is the first hospital in New York State to receive Magnet Recognition for Excellence in Nursing Service from the American Nurses Credentialing Center four consecutive times. HSS has one of the lowest infection rates in the country. HSS is an affiliate of Weill Cornell Medical College and as such all Hospital for Special Surgery medical staff are faculty of Weill Cornell. The hospital's research division is internationally recognized as a leader in the investigation of musculoskeletal and autoimmune diseases. Hospital for Special Surgery is located in New York City and online at www.hss.edu.