Our neuromuscular disease programs embrace a comprehensive approach to the diagnosis and management of ALS and other neuromuscular diseases. This includes a multidisciplinary team of experienced health care professionals who work with patients who come to our clinic.
Evidence from international research studies shows that when people with neuromuscular diseases are cared for by a multidisciplinary healthcare team, they experience an improved quality of life and longevity with the disease. The patient is at the center of this team, which also includes family members, friends, and caregivers. The healthcare specialists who make up our clinical team include:
In 2016, the ALS Program at HSS was honored by the ALS Association and designated as an ALS Certified Center of Excellence.
Each time you visit one of our clinics, you will have the chance to meet with the members of our team, as needed. Generally, you will return to see the team once every three months or as necessary based on the medical team’s assessment of your needs.
During your visit, each healthcare team member is available to see you to work with you and your family/friends to develop a care plan to best manage your symptoms and individual needs. Because the visits can be long and may include many different specialists in one day, we recommend that you come to clinic with a trusted family member, friend, or caregiver. Having another person with you can help you keep track of all the information discussed during your visit.
After each visit, the clinic coordinator will work with you and/or your family to manage the services, equipment, and/or testing that the team recommended. Between your visits, the clinic team members are available to answer questions and to provide any support you may need. Learn more about our teams by clicking on one of the specialists above or by visiting the Our Team page.
The ALS clinics at Hospital for Special Surgery are funded in part through donations from generous individuals and organizations. For more information about making a donation, please contact Douglas Williams, firstname.lastname@example.org or call 212.606.1046.
Mona Shahbazi, ACNP-BC, OCN, MSN
Neurology Nurse Practitioner
Manager, Clinical Research
Hospital for Special Surgery
525 East 71st Street
Belaire 5th floor
New York, NY 10021