Myositis Program

About Us

Myositis is a rare, chronic, autoimmune disease of the muscle that can be challenging to diagnose and can be an isolating experience for those affected.

  • After diagnosis, the impact of living with a rare, chronic illness remains: it is difficult to find others who can share this experience and family and friends may have a difficult time understanding the limitations and manifestations of this often “invisible” disease.
  • Myositis can impact an individual’s self-esteem, relationships, and career.

The mission of the Myositis Support Group is to enhance coping, reduce isolation, and increase understanding of the inflammatory myopathies (dermatomyositis, inclusion body myositis and polymyositis) by creating a community for mutual support and education. The Group has over 155 members and is led by a licensed professional social worker serving those with myositis and their friends and family.



Support Program Summaries

HSS offers a number of free programs that reflect our comprehensive approach to care for people with lupus, myositis and rheumatoid arthritis.