Myositis is a rare, chronic, autoimmune disease of the muscle that can be challenging to diagnose and can be an isolating experience for those affected. Having myositis may affect individuals not only physically, but also emotionally, socially, and financially.
The mission of the Myositis Support Group is to enhance coping, reduce isolation, and increase understanding of the inflammatory myopathies (dermatomyositis, inclusion body myositis and polymyositis) by creating a community for mutual support and education. Group members share strategies to help cope with these changes through open discussions about relevant issues.The Group has over 155 members and is led by a licensed professional social worker serving those with myositis and their friends and family.
A summary of each meeting is mailed to all group members, as part of a monthly newsletter. We recognize that not everyone can attend meetings.
Suzan Fischbein, LCSW
Myositis Support Group Coordinator
HSS offers a number of free programs that reflect our comprehensive approach to care for people with lupus, myositis and rheumatoid arthritis.