Men's Scleroderma Support Group

New York—February 19, 2014 

Contact: Mary Beth Bobik-Kadylak
                 Patient Education & Support Director
                 Scleroderma Foundation / Tri-State, Inc. Chapter
                 (800) 867-0885

                Elyse Bernstein
                Assistant Director Public Relations & Social Media
                Hospital for Special Surgery
                (212) 606-1197

Who: Scleroderma Foundation / Tri-State Chapter - Men’s Scleroderma Support Group

What: New Support Group for Men with Scleroderma – You are not alone

When: Initial Meeting – Wednesday, February 26, 2014 at 6pm
*Additional Dates – April 2, May 7, June 4

Where: Hospital For Special Surgery, 8th Floor, Rm 821W
              535 E 70th Street
              New York, NY 10021


For more information please contact Eric Goldstein, Support Group Leader, at 646-275-4178 or email:


About Men & Scleroderma
Because scleroderma manifests itself in a very unique way in men, their issues and concerns are unique as well. This is likely why we see so few men come to support group meetings on a regular basis. There are also other issues unique to the male gender such as upbringing, expectations and need to control emotions like sadness, grief, and signs of weakness that are likely barriers to their participation. These issues however cause more stress, adding to the fatigue and pain that most people with scleroderma experience.

This new support group will be just for men with scleroderma and will be held with the support of the Scleroderma, Vasculitis and Myositis Treatment Center at Hospital for Special Surgery.

What is Scleroderma?

Literally, scleroderma means “hard skin”; however the disease is better defined as being characterized by a hardening of the body’s connective tissue. Approximately 300,000 individuals in the US are affected by the disease. An estimated 29,000 of them live in the Tri-State Chapter’s New York, New Jersey and Connecticut service area.

About the Scleroderma Foundation / Tri-State Chapter

The Scleroderma Foundation/Tri-State Inc., Chapter is a 501(c)(3) non-profit organization serving New York, northern New Jersey and Connecticut. The chapter has a three-fold mission which is to promote the welfare of individuals and families affected by scleroderma, increase public awareness and support scleroderma research.

About Hospital for Special Surgery
Founded in 1863, Hospital for Special Surgery (HSS) is a world leader in orthopedics, rheumatology and rehabilitation. HSS is nationally ranked No. 1 in orthopedics, No. 4 in rheumatology, and No. 5 in geriatrics by U.S.News & World Report (2013-14), and is the first hospital in New York State to receive Magnet Recognition for Excellence in Nursing Service from the American Nurses Credentialing Center three consecutive times. HSS has one of the lowest infection rates in the country. From 2007 to 2012, HSS has been a recipient of the HealthGrades Joint Replacement Excellence Award. HSS is a member of the NewYork-Presbyterian Healthcare System and an affiliate of Weill Cornell Medical College and as such all Hospital for Special Surgery medical staff are faculty of Weill Cornell. The hospital's research division is internationally recognized as a leader in the investigation of musculoskeletal and autoimmune diseases. Hospital for Special Surgery is located in New York City and online at

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